THE INFLUENCE OF NGOS ON THE PALLIATIVE AND HOSPICE CARE POLICIES IN UKRAINE IN 2011–2024
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Published:
Dec 30, 2024
Abstract
The author has analyzed the role of non-governmental organizations (NGOs) in the development of palliative and hospice care in Ukraine from 2011 to 2024. Using such research methods, as bibliosemantic and systems analysis, it has been determined that the need for such care remains high, with NGOs playing a crucial role in its provision. Special attention is given to projects supported by the International Renaissance Foundation. However, NGO activities are often fragmented, complicating the systemic development of palliative care. The necessity of an integrated approach is emphasized, encompassing medical, social, and legal support for patients, along with enhanced coordination between governmental and non-governmental structures to ensure compliance with international standards. Additionally, conditions must be created in the state for active civil society participation in shaping policies within this sphere.
How to Cite
Volf, O. (2024). THE INFLUENCE OF NGOS ON THE PALLIATIVE AND HOSPICE CARE POLICIES IN UKRAINE IN 2011–2024. Baltic Journal of Legal and Social Sciences, (4), 311-319. https://doi.org/10.30525/2592-8813-2024-4-33
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Keywords
hospice and palliative care, social work in palliative care, Ukraine, clinical social work, social care, hospice and palliative care in developing countries, NGO in developing countries
References
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22. Treninh «Fandreizynh i proektnyi menedzhment u sferi zakhystu prav vazhkokhvorykh ditei» [Training Fundraising and project management in the sphere of rights protection of seriosly ill children] (2016). Retrieved from https://gurt.org.ua/news/trainings/34973/bull/ (18.10.2024) [in Ukrainian].
23. Treninh «Zakhyst prav tiazhko khvorykh ditei» [Training «Protection of rights of ill children»] (2016). Retrieved from https://naiu.org.ua/trening-zahyst-prav-tyazhko-hvoryh-ditej/ (23.10.2024). [in Ukrainian].
24. Tsentr testuvannia pry MOZ Ukrainy [MoH Center of testing] 2024. Retrieved from https://www.testcentr.org.ua/uk/bpr (12.10.2024) [in Ukrainian].
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28. Uzahalnena dopovid pro rezultaty monitorynhu shchodo dotrymannia prav patsiientiv, shcho potrebuiut paliatyvnoi dopomohy, u zakladakh okhorony zdorovia Ukrainy (2017). [Report on results of the monitoring about rights of seriously ill patients who need palliative care, in medical facilities]. Retrieved from https://issuu.com/irf_ua/docs/_____________________2018____.docx (12.11.2024)[in Ukrainian].
29. Volf O. (2024). Dosvid roboty neuriadovykh orhanizatsii shchodo rozvytku dopomohy tiazhkokhvorym hromadianam u 2022-2024 rr. [Experience of NGOs about development of care to seriously ill citizens in 2022-2024]. In: Suchasni realii ta perspektyvy sotsialnoho vykhovannia osobystosti v riznykh sotsialnykh instytutsiiakh: materialy vseukrainskoi naukovo-praktychnoi konferentsii, prysviachenoi 220-richchiu vid dnia zasnuvannia Universytetu, m. Kharkiv, 7 lystopada 2024 r. (36–39). Kharkiw, Skovoroda University. [in Ukrainian].
30. Volf O. (2019). Futuristychni aspekty v sferi sotsialnoi polityky shchodo tiazhkokhvorykh v Ukraini, Velykobrytanii ta Avstralii v 2030–2040 rr. [Futuristical aspects in the sphere of social policy concerning seriously ill in Ukraine, UK and Australia], Nauki Społeczno-Humanistyczne. Polsko-ukraińskie czasopismo naukowe, № 4 (24), 25–32. [in Ukrainian].
31. Volf O. (2019). Paliatyvna ta khospisna dopomoha v Ukraini. Chastyna 1. [Palliative and hospice care in Ukraine. Part 1]. Retrieved from https://www.nuozu.edu.ua/n/p/4576-paliatyvna-ta-khospisna-dopomoha-v-ukraini-chastyna-1-mynule-ta-sohodennia-svitlii-pamiati-profesora-yuriiahubskoho-01101945-18052019-rr#gsc.tab=0 (10.10.2024) [in Ukrainian].
32. Volf O. (2024). Socio-ecological theory and the «Life model of social work practice» in practical social work in the field of palliative and hospice care. Psychology and social work, 1(59), 50–62, DOI https://doi.org/10.32782/2707-0409.2024.1.5
33. Volf O. (2014) Struktury hromadianskoho suspilstva ta yikh rol u humanizatsii sotsialnoi polityky derzhavy [Structures of the civil society and their role in the humanisation of social policy of country], Odesa, University «Juridical Academy» [in Ukrainian].
34. Volf O. O., Gedeon I. V., Golovachova K. G., Zamorska T. I., Ostrolutska L. I. (2016). Zvit za rezultatamy doslidzhennia shchodo dotrymannia prav tiazhkokhvorykh ditei v Ukraini [Report on results of the study of rights of seriosly ill children].Kyiv: Talkom. [in Ukrainian].
35. Zminy v okhorony zdorovia zalezhat vid nas samykh [Changes in the healthcare dependant on us]. Retrieved from https://www.prostir.ua/?news=zminy-v-sferi-ohoroni-zdorovya-zalezhat-vid-nassamyh (01.11.2024) [in Ukrainian].
36. Zvit pro diialnist blahodiinoi orhanizatsi «Asotsiatsiia paliatyvnoi ta khospisnoi dopomohy» za 2022-traven 2024 rr. (2024). [Report on activities of charity Association of palliative and hospice care]. Retrieved from http://palliativ.kiev.ua/gallery/zwit-ukr1.pdf (12.11.2024) [in Ukrainian].
37. Zvit pro diialnist navchalno-metodychnoho tsentru Oblasnoho klinichnoho tsentru paliatyvnoi dopomohy m.Ivano-Frankivska (2005–2017 rr) (2018). [Report on activities of educational center on palliative care in Ivano-Frankiwsk] Retrieved from http://palliative.if.ua/ua/charity-foundation/reports/view/194/ (28.10.2024) [in Ukrainian].
2. Derzhavnyi ekspertnyi tsentr MOZ Ukrainy. Multydystsiplinarni robochi hrupy ta temy (2024). [Ministry of health State expert center. Multidisciplinary taskforces and topics]. Retrieved from https://www.dec.gov.ua/mtd/multydysczyplinarni-robochi-grupy (11.11.2024) [in Ukrainian].
3. Diialnist iz zabezpechennia dostupnosti zneboliuvalnykh preparativ dlia paliatyvnykh patsiientiv Rivnenskoi i Volynskoi oblastei (2014) [Activities on better availability of pain management for patiets in Rivne and Volyn regions]. Retrieved from https://www.network.rv.ua/news/120 (18.10.2024) [in Ukrainian].
4. Dzhuhan R. (2023). Potreby liudei pokhyloho viku ta yikh realizatsiia v umovakh suchasnoho ukrainskoho suspilstva (sotsiolohichnyi dyskurs) [Needs of elderly and their realisation in modern society], Uzhogord, RIK-U. [in Ukrainian].
5. Govda N. I. (2013). Typovi vypadky porushen prav tiazhkokhvorykh hromadian [Typical cases of seriiosly ill rights violation]. In: Sotsialna polityka shchodo tiazhkokhvorykh (nevylikovnykh) Materialy II-yi shchorichnoi naukovo-praktychnoi konferentsii (23–26) [in Ukrainian].
6. Hromadske zdorovja (2022) [Public health]. Retrieved from https://www.irf.ua/program/health/(29.10.2024) [in Ukrainian].
7. Husij O.V. (2017). Pravo na hidnu smert. Vidverta rozmova pro bil ta paliatyvnu dopomohu [Right to dignity dealth. Honest talk about pain and palliative care]. Retrieved from www.umj.com.ua/uk/publikatsia-111182-pravo-na-gidnu-smert-vidverta-rozmova-pro-bil-ta-paliativnu-dopomogu (11.10.2024) [in Ukrainian].
8. ISAR «Ednannia» (2024). Retrieved from https://ednannia.ua/ (01.10.2024) [in Ukrainian].
9. Istorychna dovidka. Kafedra paliatyvnoi ta khospisnoi medytsyny (2024). [Historical review. Department of palliative and hospice medicine]. Retrieved from https://www.nuozu.edu.ua/s/np/k/paliatyvnoi-ta-khospisnoi-medytsyny/istoriia-kafedry#gsc.tab=0 (30.10.2024) [in Ukrainian].
10. Kaplan Y., Skvotskova V., Valevski O. (2024). Stan rozvytku hromadianskoho suspilstva v Ukraini u 2023–2024 rokakh [Development of civic society in Ukraine in 2023-2024]. In: Potapenko V., Kaplan Y., Tyscheknko V. (Eds.). Kyiv, NISD. [in Ukrainian].
11. Khvori dity maiut pravo zhyty [Ill children have a right to live] (2016). Retrieved from https://www.ukrinform.ua/rubric-presshall/1985887-hvori-diti-maut-pravo-ziti.html (16.10.2024). [in Ukrainian].
12. Kondratenko O. (2023). Vzaiemovidnosyny vlady ta neuriadovykh orhanizatsii v Ukraini: vytoky ta suchasnyi stan [Relations of power and NGOs in Ukraine: sources and the modern situation], Naukovi pratsi Mizhrehionalnoi Akademii upravlinnia personalom. Politychni nauky ta publichne upravlinnia, 3 (69), (31–41) [in Ukrainian].
13. Moiseienko R. O., Hojda N. G., Tsarenko A. V., Knyazewich V. M., Tsajkowska V. V. (2022). Optymizatsiia systemy paliatyvnoi ta khospisnoi dopomohy v Ukraini: realii i perspektyvy [Optimisation of the palliative and hospice care in Ukraine: reality and perspectives]. Kyiv [in Ukrainian].
14. Na Mykolaivshchyni vidbuvsia treninh na temu «Fandreizynh i proektnyi menedzhment u sferi zakhystu prav vazhkokhvorykh» (2018) [In Mykolaiv oblast was made training on the topic Fundraising and project management in the sphere of protection of rights of seriously ill]. Retrieved from https://www.msp.gov.ua/news/14799.html (12.09.2024) [in Ukrainian].
15. Nadani granty [Grants provided] Retrieved from https://www.irf.ua/grants/awarded_grants/(27.10.2024) [in Ukrainian].
16. Pro zatverdzhennia Derzhavnoho standartu paliatyvnoho dohliadu [Order about the approvement of the Standart of palliative care] Retrieved from https://zakon.rada.gov.ua/laws/show/z0247-16#Text (15.09.2024) [in Ukrainian].
17. Pro zatverdzhennia Poriadku vzaiemodii subiektiv pry nadanni sotsialnoi posluhy paliatyvnoho dohliadu vdoma nevylikovno khvorym [Order about the cooperation between provider during provision of palliative care] Retrieved from https://zakon.rada.gov.ua/laws/show/z0625-14#Text (14.09.2024) [in Ukrainian].
18. Psykhoonkolohiia. Stratehiia rozvytku nauky ta dopomohy [Psychooncology. Strategy of development of science and support] (2020). Retrieved from https://www.prostir.ua/?news=psyhoonkolohiya-stratehiya-rozvytku-nauky-ta-dopomohy (29.10.2024) [in Ukrainian].
19. Rohanski A. (2020). Paliatyvna dopomoha: vazhlyva reforma, yaku nikhto ne pomityv [Palliative care: important unnoticed reform]. Retrieved from https://rubryka.com/blog/paliatyvna-dopomoga/(01.09.2024) [in Ukrainian].
20. Struk O. (2024). Paliatyvna dopomoha. Na paperi maiemo vse, shcho treba, ale v zhytti vono ne zavzhdy tak [Palliative care. On the paper we have all what is needed, but in life it is not always so]. Retrieved from https://lb.ua/society/2024/03/12/602752_paliativna_dopomoga_na_paperi.html (18.11.2024) [in Ukrainian].
21. Treninh dlia hromadskykh aktyvistiv na temu zakhystu prav tiazhko (nevylikovno) khvorykh [Training for civic activists on protection of rights of seriously ill] Retrieved from https://gurt.org.ua/news/trainings/15228/ (20.10.2024) [in Ukrainian].
22. Treninh «Fandreizynh i proektnyi menedzhment u sferi zakhystu prav vazhkokhvorykh ditei» [Training Fundraising and project management in the sphere of rights protection of seriosly ill children] (2016). Retrieved from https://gurt.org.ua/news/trainings/34973/bull/ (18.10.2024) [in Ukrainian].
23. Treninh «Zakhyst prav tiazhko khvorykh ditei» [Training «Protection of rights of ill children»] (2016). Retrieved from https://naiu.org.ua/trening-zahyst-prav-tyazhko-hvoryh-ditej/ (23.10.2024). [in Ukrainian].
24. Tsentr testuvannia pry MOZ Ukrainy [MoH Center of testing] 2024. Retrieved from https://www.testcentr.org.ua/uk/bpr (12.10.2024) [in Ukrainian].
25. Tygnyriadno L. (2024). Chym zhyve hromadianske suspilstvo protiahom dvokh rokiv viiny – doslidzhennia [How lives the civic society during 2 years of war]. Retrieved from https://zmina.info/articles/chym-zhyve-gromadyanske-suspilstvo-protyagom-dvoh-rokivvijnydoslidzhennya1/17.11.2024 [in Ukrainian].
26. Ukrainska liha rozvytku paliatyvnoi ta khospisnoi dopomohy. Misiia ta pryntsypy [Ukrainian League of palliative and hospice care development. Mission and Principles]. Retrieved from https://ligalife.com.ua/ua/pro-nas/misiya-i-principi (19.10.2024). [in Ukrainian].
27. Ukrainska storona Platformy gromadyanskogo suspilstwa Ukraine-EU [Ukrainian side of the Platform of the civil society Ukraine-EU] Retrieved from https://eu-ua-csp.org.ua/what-is-eu-uacsp/(10.09.2024). [in Ukrainian].
28. Uzahalnena dopovid pro rezultaty monitorynhu shchodo dotrymannia prav patsiientiv, shcho potrebuiut paliatyvnoi dopomohy, u zakladakh okhorony zdorovia Ukrainy (2017). [Report on results of the monitoring about rights of seriously ill patients who need palliative care, in medical facilities]. Retrieved from https://issuu.com/irf_ua/docs/_____________________2018____.docx (12.11.2024)[in Ukrainian].
29. Volf O. (2024). Dosvid roboty neuriadovykh orhanizatsii shchodo rozvytku dopomohy tiazhkokhvorym hromadianam u 2022-2024 rr. [Experience of NGOs about development of care to seriously ill citizens in 2022-2024]. In: Suchasni realii ta perspektyvy sotsialnoho vykhovannia osobystosti v riznykh sotsialnykh instytutsiiakh: materialy vseukrainskoi naukovo-praktychnoi konferentsii, prysviachenoi 220-richchiu vid dnia zasnuvannia Universytetu, m. Kharkiv, 7 lystopada 2024 r. (36–39). Kharkiw, Skovoroda University. [in Ukrainian].
30. Volf O. (2019). Futuristychni aspekty v sferi sotsialnoi polityky shchodo tiazhkokhvorykh v Ukraini, Velykobrytanii ta Avstralii v 2030–2040 rr. [Futuristical aspects in the sphere of social policy concerning seriously ill in Ukraine, UK and Australia], Nauki Społeczno-Humanistyczne. Polsko-ukraińskie czasopismo naukowe, № 4 (24), 25–32. [in Ukrainian].
31. Volf O. (2019). Paliatyvna ta khospisna dopomoha v Ukraini. Chastyna 1. [Palliative and hospice care in Ukraine. Part 1]. Retrieved from https://www.nuozu.edu.ua/n/p/4576-paliatyvna-ta-khospisna-dopomoha-v-ukraini-chastyna-1-mynule-ta-sohodennia-svitlii-pamiati-profesora-yuriiahubskoho-01101945-18052019-rr#gsc.tab=0 (10.10.2024) [in Ukrainian].
32. Volf O. (2024). Socio-ecological theory and the «Life model of social work practice» in practical social work in the field of palliative and hospice care. Psychology and social work, 1(59), 50–62, DOI https://doi.org/10.32782/2707-0409.2024.1.5
33. Volf O. (2014) Struktury hromadianskoho suspilstva ta yikh rol u humanizatsii sotsialnoi polityky derzhavy [Structures of the civil society and their role in the humanisation of social policy of country], Odesa, University «Juridical Academy» [in Ukrainian].
34. Volf O. O., Gedeon I. V., Golovachova K. G., Zamorska T. I., Ostrolutska L. I. (2016). Zvit za rezultatamy doslidzhennia shchodo dotrymannia prav tiazhkokhvorykh ditei v Ukraini [Report on results of the study of rights of seriosly ill children].Kyiv: Talkom. [in Ukrainian].
35. Zminy v okhorony zdorovia zalezhat vid nas samykh [Changes in the healthcare dependant on us]. Retrieved from https://www.prostir.ua/?news=zminy-v-sferi-ohoroni-zdorovya-zalezhat-vid-nassamyh (01.11.2024) [in Ukrainian].
36. Zvit pro diialnist blahodiinoi orhanizatsi «Asotsiatsiia paliatyvnoi ta khospisnoi dopomohy» za 2022-traven 2024 rr. (2024). [Report on activities of charity Association of palliative and hospice care]. Retrieved from http://palliativ.kiev.ua/gallery/zwit-ukr1.pdf (12.11.2024) [in Ukrainian].
37. Zvit pro diialnist navchalno-metodychnoho tsentru Oblasnoho klinichnoho tsentru paliatyvnoi dopomohy m.Ivano-Frankivska (2005–2017 rr) (2018). [Report on activities of educational center on palliative care in Ivano-Frankiwsk] Retrieved from http://palliative.if.ua/ua/charity-foundation/reports/view/194/ (28.10.2024) [in Ukrainian].